The Council has established a new Working Party to examine the ethical issues that arise in connection with genomics, health records, database linkage and privacy.
We are delighted to confirm that the members of this Working Party will be:
- Professor Martin Richards, Emeritus Professor of Family Research, University of Cambridge (Chair)
- Professor Ross Anderson, Professor of Security Engineering, University of Cambridge
- Stephen Hinde, Head of Information Governance and Group Caldicott Guardian for the Bupa Group
- Dr Jane Kaye, Director of the Centre for Law, Health and Emerging Technologies at the University of Oxford
- Professor Anneke Lucassen, Council Member, Consultant Clinical Geneticist and Professor of Clinical Genetics at the University of Southampton
- Professor Paul Matthews, Head of Division of Brain Sciences, Imperial College London and Vice President in Medicines Discovery and Development at GlaxoSmithKline (GSK)
- Professor Mike Parker, Professor of Bioethics and Director of the Ethox Centre at the University of Oxford
- Margaret Shotter, Member of UK Biobank Ethics and Governance Council
- Peter Singleton, Director of Cambridge Health Informatics Limited and Research Fellow at the University College London
- Dr Geoff Watts, Council Member, science writer and broadcaster
- Dr Susan Wallace, Lecturer in Population and Public Health Sciences, University of Leicester
- John Wise, Executive Director, Pistoia Alliance
The Working Party is due to meet for the first time in March, and will be seeking a wide range of further views and evidence in the early phase of this project. For background information about the sorts of issues that might be addressed please see the earlier call for expressions of interest.
More information about this project will be available soon, and you can keep up to date with this work as it progresses in the following ways: