Children and clinical research: ethical issues

Report

Published 14/05/2015

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Clinical research involving children is essential to increase our understanding of childhood conditions and improve healthcare for children. Yet professionals and parents often feel uneasy about asking children to take part in research, for example because of potential risks or burdens.

This report looks at how children and young people can ethically be involved in research, and makes recommendations about the roles and responsibilities of children, their parents or guardians, researchers and others. A magazine version and a short animation (below) are also available.

Project team

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Katharine Wright

Assistant Director

Katharine is part of the senior management team. She is responsible for leading Council projects and inquiries and speaking on behalf the Council on a range of ethical issues. Before joining the Council in 2007, she worked on health law and ethics in the NHS, Department of Health and House of Commons.

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Kate Harvey

Senior Research Officer

Kate undertakes research to support the Council’s work and contributes to the drafting of reports. She also monitors developments in areas of interest to the Council. Prior to joining the Council, Kate completed an MA in Medical Ethics and Law at King’s College London.

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