Report27th July 2023

Ethics in genomics healthcare and research: Building connections and sharing best practice

Establishing a UK best practice approach for ethical standards in genomics research.

Genomics

Summary report (PDF)Summary of case studies (PDF)

In 2022/2023 we led discussions on establishing a UK best practice approach for applying strong and consistent ethical standards in genomics research. This work was carried out in partnership with the Office for Life Sciences (OLS) and genomics healthcare leads in Scotland, Wales, and Northern Ireland.

We published findings from this project in July 2023. Following on from this work, we undertook a mapping of existing ethics resources in order to understand what is already available and identify areas where further work is needed.

This work was funded and led by the Nuffield Council on Bioethics.