Communication and information
Children and young people need clear information about the research before they can decide if they want to take part. Good communication and good relationships with researchers are very important.
Explaining research clearly to children and young people
Researchers need to make sure that they explain about the research in a way that is easy to understand – for example with information leaflets, games, videos, social networking sites or apps.
Explaining research clearly to parents
Parents need clear information too. It is important that researchers work with parents of younger children to make sure that they are happy with what their child is being told and how it is being done.
Being able to know what the researchers found out
Children, young people and parents must have the option of finding out about the outcome of the research – what the researchers found out as a result of doing the research and what difference this might make.
Consent and assent
The law says that people can only take part in research if they have received enough information about the study, and if they have given their consent. In research with children and young people, it is usually parents or guardians who give consent.
Sometimes, children are also asked to give their assent to research – say that they agree to take part.
For more information, see Chapter 6
- Children and clinical research
- Chapter by chapter
- What’s this report about?
- What’s different about research with children and young people?
- Researchers’ responsibilities
- Making shared decisions about research
- Deciding what research happens in the first place
- Making research easier for everyone
- Practical guide for assessment of research with children and young people
- Resources and links