Terms of reference

1.  To survey and report on recent and prospective advances in genetic screening and its applications;

2.  To review experience to date of current and potential benefits and difficulties of genetic screening and associated counselling;

3.  To identify, define and discuss the ethical issues affecting both individuals and society which arise, or may arise in future from genetic screening, including such matters as:

(a) the general risk of stigma attaching or being attached to those perceived as genetically disadvantaged;

(b) the handling and holding of information;

(c) consent to being screened;

(d) confidentiality in all its aspects;

(e) the implications for employment and insurance;

(f) the storage and use of genetic information for legal purposes.


Previous work

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Nuffield Council on Bioethics
28 Bedford Square
London, WC1B 3JS

Tel: +44 (0)20 7681 9619

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