Consultation responses: the linking and use of biological and health data

The Nuffield Council on Bioethics has decided that, where possible, it will post consultation responses on its website. The Working Party has found the replies extremely useful and has considered all the responses.

In the spirit of openness, the Council has made available these submissions to the wider public. (Only the submissions of those respondents who have given their consent have been made available).


Anonymous 1

Anonymous 2

Anonymous 3


Atina Krajewska and Ruth Chadwick

Dr Jo Bowen

Dr John Saunders, Chair of the Royal College of Physicians (RCP) Committee on Ethical Issues in Medicine

Ian Herbert

Jane Halliday

Julian Hitchcock

Martin Bobrow

Nadine Levin, University of Exeter

Patrick Finlay PhD

Pauline McCormack, Simon Woods and Jackie Leach-Scully, PEALS Research Centre, Newcastle University

Professor Carol Brayne

Professor Martin Widschwendter and Dr Daniel Reisel, UCL Department of Women’s Cancer’s, Institute of Women’s Health, University College London

Professor Neil Lawrence, Department of Computer Science and Sheffield Institute for Translational Neuroscience, University of Sheffield

Professor Sheila M. Bird OBE FRSE

Professor Tim Spector, KCL

Shawneequa Callier

Sylwia Maria Olejarz


Association of Medical Research Charities (AMRC)

British Dental Association

British Medical Association

Cancer Research UK

Centre for Longitudinal Studies (ESRC Resource Centre), Institute of Education, University of London

Christian Medical Fellowship

Clinical Trial Service Unit & Epidemiological Studies Unit (CTSU), Nuffield Department of Population Health, University of Oxford

eHealth Research Group, University of Leeds Institute of Health Sciences

Exeter Centre for the Study of the Life Sciences (Egenis)

Farr Institute @ CIPHER, with input from the Innovative Governance Group of the Farr Institute for Health Informatics Research

GeneWatch UK

Information Commissioner’s Office

Medical Research Council (MRC)

National Bioethics Commission of Mexico


PHG Foundation

Privacy Advisory Committee, Northern Ireland

Progress Educational Trust

Royal Academy of Engineering

The Human Fertilisation and Embyology Authority

The Mason Institute for Medicine, Life Sciences and the Law, University of Edinburgh

The Physiological Society

The Wellcome Trust

UCL Centre for Health Informatics and Multiprofessional Education

U.S. Presidential Commission for the Study of Bioethical Issues

Wellcome Trust Sanger Institute

World Medical Association (WMA)

Previous work

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