The report ‘The collection, linking and use of data in biomedical research and health care: ethical issues‘ was published in February 2015. Since its publication the Council has been working to follow up the recommendations through meetings with relevant organisations, contributing to Parliamentary and policy debates, presentations at conferences and events, and a range of other activities.
In July 2016 a paper was published which summarises follow-up, dissemination and key developments since the report’s publication, including the following:
- The House of Commons Science and Technology Select Committee enquiry on big data
- A roundtable hosted with the Department of Health on public trust and health data
- Publication of the National Data Guardian’s review of data security, consent and opt-outs
Download the summary: Biological and health data – Report developments July 2016.